Finally some answers

Today i had an important meeting with the man himself, Prof Heaton. He finally gave me some reassurance and sees things from my perspective and can tell how important this surgery means to me and for once i was not compared against Aneisha as he realises that i am an individual and deserves the same chances as everyone else.

I was so anxious going into the appointment as i had a lot of questions in my head that i need to be answered but as usual, typical me when i get there i am lost for words and go totally go blank. However, he still managed to answer most of them as he explained what the surgery entails and his views and opnions on what i should do. I think he could see through me and feel how hungry i am for life and that i deserve some sort of normality and pain free life. He also thinks that i would benefit a lot from the surgery if all goes to plan but have to also be prepared for the worstt as it comes with very high risks.

His plan for now is that he wants me to have a barrium swallow procedure to check for any obstructions in my bowels. When he told me that i was more concerened about having that procedure more that the surgery itself because out of all the procedures one can have that is my worst nightmare, last time it took them 2 days to actually get gastro graffin down me. I guess i just have to suck it up and do it somehow without passing out.

Once he has the results from the procedure i need to go back to see him at clinic where we will discuss the surgery in more detail and put a date aside for when he and Parthi can both do the surgery.

The best thing that came out of today was knowing that Prof was on my side and is giving me that chance. I have every faith that i am under the best care.

A New Year! 2011!

We are almost at the end of January and so far the new year hasn't been great. As usual at this time of the year i end up in hospital but this time i refuse to be admitted and just soldiered through my illness. Initially i thought it was swine flu until i started getting all the typical symptoms for cholangitis and my transplant co-ordinator was also convinced it was cholangitis (liver infection). I went to my GP and she started me on a course of ciprofloxacin although i know i really needed ivabs. Thank fully the oral kicked it and worked so as soon as i was feeling better i went back to work as i was getting bored and frustrated. Yesterday was my first day back and so far it is going well apart from the pain which is nothing new.

Tomorrow morning i have the important appointment with the man himself, Prof Heaton as the issues of this surgery has been going on for far too long now and i just need some answers and confirmation from him that i can still go ahead with the surgery before i get to the point were i wont be fit and well enough to have it. I realise it comes with major risks but they are all risks that i have thought about thouroughly and am ready to take and i'm trying to stay positive.

I am feeling very anxious about tomorrows appointment. I just hope he gives me the green light after all this wait. I need my life back and pain to go away.

Heaven has gained another liver angel

It's with a heavy hard that i write another about another big loss. Mallory Smith, a very young, vibrant and brave lady lost her battle after 2 liver transplants and numerous complications passed away on Jan 2th 2011 after doctors suggested that it was best that they discontinue her life support as there isn't anymore they could do for her.

Mallory was such an inspiration to many other fellow patients and anyone who came in touch with her. She fwas a fighter and never gave up until her last breath. Mal we will miss you but at least we know where you are and you're free from pain and suffering.

R.I.P sweet girl.