Re-post- originlly posted on 04/04/14
I finally got to see Prof Heaton yesterday although I had to wait 4 hours. My appointment was at 9:40am and I got seen at 1pm due to there being 3 transplants going on which he had to set up first.
I finally got to see Prof Heaton yesterday although I had to wait 4 hours. My appointment was at 9:40am and I got seen at 1pm due to there being 3 transplants going on which he had to set up first.
During my appointment the first thing Prof noticed was the difference in my breathing and my overall appearance and was very pleased with the improvement as he said he was very worried that I was deteriorating very rapidly with the Pulmonary Hypertension and was afraid that it wasn't caught in time and that I may not have survived much longer. Obviously he didn't tell me at the time how concerned he really was as he didn't want to get me down even more but now that I am improving he was so pleased and told me how he really did feel.
I then asked him if I could go on holiday and he said that on the liver side it's all good and I can but to ask Hammersmith regarding my heart which I said I did and they said I can but would need to have an oxygen tank during the flight which the airline should provide for a small fee if it's a low cost airline but the major airlines usually provide it for free. I finally sent of my passport for renewal so once it arrives, here I come world!
I also mentioned that I got a job as HCA again and he said it should be fine as long as I take it slow at first and that it is sensible of me that I start off as part time.
So all in all a great clinic appointment which I was not expecting and everyone I bumped into said that I looked a lot more well and had noticed my breathing and walking. This time I have 3 months off as he don't want to see me until June. However, he still wants me to see the other Prof on the medical side as although I am improving with the PHT he still wants to come up with a long term surgical intervention plan once my heart is completely stable and can withstand GA as the medication is only going to help control my symptoms and not cure the condition which he ultimately wants to do. However it is no longer a matter of urgency now as my improvement has bought us more time.
